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How can i get my son a diagnosis? autism/aspergers (long question)?

Question: How can i get my son a diagnosis? autism/aspergers (long question)?

(Posted by: Elaine on 2010-01-15 13:37:24)

Right im going have to paint the bigger picture here.. my auntie used to work with children with aspergers and it was her who 1st asked me if id thought that dylan had autism.. i laughed and said: dont you mean adhd (i didnt know what autism was) anyway since then ive looked up loads stuff on the internet about aspergers and he has some of the symptoms but im a tad unsure about others. my son is four, hel be five in july and starting school after summer. last year the nursery told me to get in touch with a doctor becuase his behaviour at school was innexcusable and they needed input. i can tell they beleive he has something on autism spectrum aswell they asked me to see a doctor about dylan..i had already been as his behaviour at home was pretty bad too.. the doctor asked me questions which reated to autism (i know that now) then he sent me to a paedetrician, she took background etc and basicly she didnt think it was aspergers coz he spoke to her with eye contact. (even though she said she wasnt ruling it out) since then the doctor has sent me to a paedetrician.. the paedetrician has sent me to a psychologist and the psychologist has sent me to another lady who sees my son alone.. "its a playdate " this has gone on over a year.. and dylan has next playdate next week.. his behaviour is out of control if im being honest im at the point i am not coping and nobody seems to be helping me.. i have no authority over him whatsoever and its embarressing.. my auntie got a lady she knew who used to work with kids and diognose kids to come see dylan at my house.. she also with my auntie is adamant its aspergers syndrome and she used work at the centre i take dylan too.. she thinks there panning me off coz im a single parent.. dylan lines up his toys has tempers etc and does weird noises or jerks his body or flaps hands and he hits himself in the face! but apart from that most of the time he appears normal.. im scared hel get chucked outta school the teachers are losing there patience.. i dont know what to do it was that bad today i burst into tears to my auntie on the fone and said puting him into care had crossed my mind........ id never do it.. but dont know what im meant to do to get help........ anyone got experience with this? help please..........


Answers:

Posted by: caz on 2010-01-15, 14:44:23

Sounds like you going throught a lot a the momet, sounds like you going throgut a lot of tests and these take a lot of time, i would keep getting back to these people dont stop intill you get answers, does your son now how to play with toys? you could contact nas!? very useful nas.org.uk/ i use them a lot,

  

Posted by: D.D on 2010-01-15, 14:00:34

Aspergers.toomey.org they have all kinds of info there

  

Posted by: Sad on 2010-01-15, 19:11:26

I would get a parent advocate or a lawyer that is on your side. A lot of school systems, ( I only have experience in Florida) push people around for they do not have resources for everyone due to budget cuts, etc.. Those that take a strong stand or has someone who understands the system fight for them usually get the resources they need. Also look on-line for programs in your area such as Card or Heal.

  

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